The haemophilia centre is a comprehensive care centre, providing a range of services for patients with haemophilia, von Willebrand's disease, other inherited coagulation factor deficiencies and inherited platelet disorders.
The service includes clinics for diagnosis and management of bleeding disorders (see clinic information). Patients with severe lifelong bleeding disorders have specialist needs and are able to access other services across different disciplines.
Specialist nursing team
Led by nurse consultant in haemophilia Christine Harrington, the team are responsible for:
- coordinating haemophilia services in the hospital and in the community, including liaison with other hospitals and haemophilia centres
- a telephone helpline during working hours
- home treatment training and education, including home and school visits
- management of the home delivery of clotting factor concentrate.
- management of treatment for bleeding episodes, dentistry and surgical procedures in the hospital
Psychosocial support and welfare advice
Nicola Dunn, family therapist
Patients can self refer to this service.
Musculoskeletal services
Mr Nicholas Goddard, consultant orthopaedic surgeon
Mr Haroon Mann, consultant orthopaedic surgeon
Paul McLaughlin, haemophilia physiotherapist
Between them they are responsible for regular assessment of joint and muscle function for patients with severe haemophilia, identifying the need for surgery and intensive physiotherapy. Patients with other bleeding disorders requiring orthopaedic assessment and surgery may also be referred to this clinic.
Liver
Dr David Patch, consultant hepatologist
Dr T T Yee, Haemophilia centre
This combined clinic, held every two months, provides care for patients affected by Hepatitis C, including assessment, discussion of management options and the initiation of monitoring treatment.
HIV
Dr. Margaret Johnson, consultant physician
Dr T T Yee, Haemophilia centre
This combined clinic, held every two to three months, provides care/management for patients with HIV infection.
Clinics for women - obstetrics and gynaecology
Ms Rezan Abdul-Kadir, consultant obstetrics and gynaecology
Dr T T Yee, haemophilia centre
Debra Pollard, clinical nurse specialist
This clinic, held every other week, provides antenatal care including planning for the delivery of a child who may be affected by a bleeding disorder. Advice and treatment is also provided for women who experience heavy periods as a consequence of their bleeding disorder.
Genetic counselling and diagnosis
Dr Keith Gomez, consultant haematologist & senior lecturer
Nicola Dunn, family therapist
This clinic, held every other week, provides genetic counselling and diagnosis for women and their families.