Royal Free London NHS Foundation Trust
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Lysosomal storage disorders
Lysosomal storage disorders

Who supports our service?

Who supports our service at the Royal Free
Anaesthetic department
Advice regarding chronic and acute pain control in both Gaucher's and Anderson-Fabry patients from consultant Dr. Ordman and the palliative care team including Dr Adrain Tookman, Dr Philip Lodge and nurse consultant Catherine Hopkins.
Audiology
Baseline and follow-up assessment.
2NA
Haematology day unit where treatment can be given when required.
11 South
For acute admissions.
Cardiology
Assessment and management by DR Pery Elliott and team at the Heart Hopsital.
Dermatology
Assessment by consultant Dr. Cate Orteu.
Gastroenterology
Assessment by consultant Dr. Charles Murray.
Hepatobiliary
Assessment by consultant Dr James O’Bierne.
Imaging department
Regular investigations including MRI and ultrasound with interpretation by Dr. Brian Holloway and our neuroradiology team.
Laboratory services
Haematology, biochemistry and haemostasis.
Lung function
Baseline lung function tests.
Nephrology
Assessment of Anderson-Fabry patients by consultant Dr. Aine Burns.
Neurology
Assessment by consultant Dr. Lionel Ginsberg.
Neurosurgery
Including assessment and spinal surgery by consultant Mr Neil Dorwood.
Nuclear medicine
Investigations into renal function using GFR.
Opthalmology
Baseline and follow-up of Anderson-Fabry patients for eye changes.
Orthopaedics
Assessment and joint replacement by consultant surgeon Mr. Nimalan Maruthainer.

 
page last reviewed: 06 March 2012