The Gauchers Association provides a support network for adults & children affected by Gaucher disease.
Fabry and MPS
The MPS Society is a voluntary support group for children of adults with mucopolysacharide disorders. The MPS Society also provides support and information for adults and children with Fabry disease.
AGSD (Association for Glycogen Storage Disorders) is a support network for patients with Pompe disease and other glycogen storage disorders.
The Niemann-Pick Disease Group (UK) is a support group advocacy for adults and children with NPC.
Rare Disease UK
For people with rare diseases, provides information on a wide range of disorders classified as rare.