NET patient videos

The neuroendocrine tumour (NET) team at the Royal Free Hospital have produced a number of videos to help you find out more about NET. You can watch all the videos on our YouTube channel.

Patient and partner experience of NET

Charles Suckling, a NET patient, shares with us his story from diagnosis to present day, including the perspective of his partner. Watch the video.

 

Advances in NET research: present and future

Dr Dalvinder Mandair gives a technical talk on advances in neuroendocrine tumours: present and future. Watch the video.

 

NET fundraising: upcoming events

Mike Wright and Jorge Garci-Hernandez, NET patient coordinators, provide an update on all upcoming fundraising events at the Royal Free London. Watch the video.

 

NET fundraising: Royal Free Charity

Lucy Power, database administrator at the Royal Free Charity, gives us an update on the charity's work at the Royal Free Hospital. Watch the video.

 

NET symptom management

Philippa Davies, lead nurse for neuroendocrine tumours at the Royal Free Hospital, provides an excellent and detailed overview of symptom management. Watch the video.

 

Complementary therapy do's and don'ts

Jorge Garcia-Hernandez, NET patient coordinator and medical statistician, presents the do's and don'ts of complementary therapies. Watch the video.

 

NET fundraising scheme

Mike Wright, NET patient co-ordinator, discusses the NET fundraising scheme and organises the first NET park run. Please join us on 5 December 2015. Watch the video.

 

A treat on top of the treatment

Keith Hunt MBE, complementary therapies co-ordinator, talks about how gentle massage can help with the stress of daily life. Watch the video.

 

Patient story: diagnosis to present day

A pancreatic NET patient tell us her journey from diagnoses to present day. Watch the video.

 

Patient story: radiotargetted therapy

A patient tell us her remarkable story after receiving radiotargetted therapy under Prof Caplin's care. Watch the video.

 

Meet Professor Martyn Caplin

Professor Martyn Caplin is the lead clinician at the neuroendocrine unit at the Royal Free London and the Chair of the European Neuroendocrine Tumour Society. Prof Caplin welcomed the first NET patient support group in July 2014 with an a overview of neuroendocrine tumours. Watch the video.

 

Meet Flora, a clinical nurse specialist

Flora Dangwa, experienced clinical nurse specialist, tell us her experience in running different support groups. Watch the video.

 

Meet Jorge, a senior research nurse

Jorge Garcia-Hernandez, former senior research nurse, talks about the different trials run at the NET unit and how patients can influence research. Watch the video.

 

Meet Maia, from the NET patient foundation

Maia Simmons from the NET patient foundation explains the role of the foundation and the different NET Natter supports groups across the country. Watch the video.

 

Patient story: travel insurance

A NET patient relates his experience of travel insurance issues in NETs and gives advice to those who have a NET and wish to travel. Watch the video.

 

Open discussion on travel insurance

Jorge Garcia-Hernandez, NET patient coordinator and senior research nurse, pulls together the comments, experiences and findings regarding travel insurance for patients with cancer, particularly neuroendocrine tumours. Watch the video.

 

Meet Dr Toumpanakis, consultant in gastroenterology and NET

Dr Christos Toumpanakis, consultant in gastroenterology and neuroendocrine tumours, provides a passionate overview of the role in clinical trials at improving patient care.  In particular, Dr Toumpanakis tell us the paradox of patients presenting with similar diagnosis but having different outcomes. Watch the video.

 

Neuroendocrine tumours: the quiet cancer

Dr Christos Toumpanakis (MD PhD), consultant in gastroenterology and neuroendocrine tumours at the Royal Free London, and Jorge Garcia-Hernandez, senior research nurse at the Royal Free London, present 'Neuroendocrine tumours: the quiet cancer', at a Royal Free London Medicine for members event. Watch the video.

 

Diet and nutrition for patients with NET

Tara Whyand, specialist NET dietician, gives hints and tips on diet and nutrition for patients with NET and debunks some of the common myths regarding healthy eating for people with cancer. Watch the video.

 

Q&A with Tara, specialist NET dietitian

Tara Whyand, specialist NET dietitian, answers questions on diet and nutrition. Watch the video.

 

Molecular agents from a patient perspective

Liz Quaglia, clinical nurse specialist in NETs, provides a comprehensive evaluation of the molecular agents, sunitinib and everolimus, from a patient perspective. Watch the video.

 

NET research: genetic advances

Dr Chrissie Thirlwell provides an overview on the advances of NET research from the genetic perspective. Focusing on advances, caveats and the future. Watch the video.

 

NET discussion with Dr Navalkissoor

Dr Navalkissoor, nuclear medicine consultant, comprehensively explains the advances in NET treatment with radiotargeted therapy (PRRT). Particular attention is given to the molecule 177-Lutetium. Watch the video.

 

NET Q&A with Dr Navalkissoor

Dr Navalkissoor, nuclear medicine consultant, answers questions on the advances in NET treatment. Watch the video.

 

Meet Diane, fundraising manager

Diane Ryan, fundraising manager at the Royal Free Charity speaks about the role of the charity in supporting the NET unit and the patient support group. Watch the video.