Amyloidosis
Overview
Amyloidosis treatment at the Royal Free: what is amyloidosis?
Amyloidosis is a rare disease caused by abnormal deposition and accumulation of proteins in the tissues of the body. There are many different types of amyloidosis. Each type has different causes, different symptoms and different treatments.
The National Amyloidosis Centre (the NAC) at the Royal Free Hospital has been at the cutting edge of treatment and research into all aspects of amyloidosis for over 25 years and is responsible for the UK national caseload of amyloidosis.
The consultants at the NAC follow all patients regularly and maintain close contact with other physicians involved in their management to ensure that they receive the best and most effective treatments available.
Visit the UCL website for more information on the National Amyloidosis Centre and www.amyloidosis.org.uk for more information on amyloidosis.
Contact
Do you have an appointment?
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Royal Free Hospital
National Amyloidosis Centre
Royal Free Hospital
Rowland Hill Street
London NW3 2PFPatient enquiries: 020 7433 2725
GP enquiries: 020 7433 2725
Hospital locations
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Royal Free Hospital
Hospital switchboard: 0207 794 0500
Referrals
Referral details
Information for Referring Physicians
Referral letters should be emailed to rf.amyloidosisadmin@nhs.net
Referrals for amyloid investigation should be addressed to:
Dr Marianna Fontana, Senior Lecturer/Hon Consultant Cardiologist
Professor Julian Gillmore, Professor/Hon Consultant Nephrologist
Professor Helen Lachmann, Professor/Hon Consultant Nephrologist, Clinical Lead
Dr Shameem Mahmood, Consultant Haematologist
Dr Ana Martinez Naharro, Consultant Cardiologist
Dr Sajitha Sachchithanantham, Consultant Haematologist
Professor Ashutosh Wechalekar, Professor/Hon Consultant Haematologist
Dr Carol Whelan, Consultant Cardiologist
Referrals for periodic fever syndromes should be addressed to:
Professor Philip Hawkins, Professor/Hon Consultant Physician
Professor Helen Lachmann, Professor/Hon Consultant Nephrologist, Clinical Lead
Dr Charalampia Papadopoulou, Consultant Paediatric Rheumatologist
Please include the following details in the referral:
- Patient contact details, including full address, email and telephone number(s)
- Any biopsy details (date and hospital where performed) and a copy of the report
- Results of serum electrophoresis and serum free light chains, if performed
- Bone marrow report, if performed
- Skeletal survey report, if performed
- DPD scan report and where done, if performed
- CMR report and where done, if performed
For referral to the fever service, please include results of any imaging, serology, cultures and serial assessments of CRP, ESR or white cells.
If you wish to discuss any medical issues prior to the referral please contact one of the consultants listed above on 020 7433 2725
If you wish to check availability of appointments please contact:
Mr Rizwan Shaukat
Email: rizwan.shaukat@nhs.net
Tel: 020 7433 2732
Send referrals to:
National Amyloidosis Centre
Division of Medicine
University College London Medical School
Royal Free Hospital
Rowland Hill Street
London
NW3 2PF
Email: rf.amyloidosisadmin@nhs.net
Fax: 020 7433 2817
The Team
Consultant
Professor Julian Gillmore
Reader in medicine/honorary consultant nephrologist
Email address: j.gillmore@ucl.ac.uk
PA/secretary phone number: 020 7433 2816
Fax: 020 7433 2817
Professor Helen Lachmann
Reader in medicine/honorary consultant nephrologist
Phone number: 020 7433 2811
Email address: rf.amyloidosisadmin@nhs.net
Professor Ashutosh Wechalekar
Senior lecturer/honorary consultant haematologist
Phone number: 020 7433 2758
Fax: 020 7433 2817