Amyloidosis

Amyloidosis treatment at the Royal Free: what is amyloidosis?

Amyloidosis is a rare disease caused by abnormal deposition and accumulation of proteins in the tissues of the body. There are many different types of amyloidosis. Each type has different causes, different symptoms and different treatments.

The National Amyloidosis Centre (the NAC) at the Royal Free Hospital has been at the cutting edge of treatment and research into all aspects of amyloidosis for over 25 years and is responsible for the UK national caseload of amyloidosis.

The consultants at the NAC follow all patients regularly and maintain close contact with other physicians involved in their management to ensure that they receive the best and most effective treatments available.

Visit the UCL website for more information on the National Amyloidosis Centre and www.amyloidosis.org.uk for more information on amyloidosis.

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Referral details

Information for Referring Physicians

Referral letters should be emailed to rf.amyloidosisadmin@nhs.net

Referrals for amyloid investigation should be addressed to:

Dr Marianna Fontana, Senior Lecturer/Hon Consultant Cardiologist
Professor Julian Gillmore, Professor/Hon Consultant Nephrologist
Professor Helen Lachmann, Professor/Hon Consultant Nephrologist, Clinical Lead
Dr Shameem Mahmood, Consultant Haematologist
Dr Ana Martinez Naharro, Consultant Cardiologist
Dr Sajitha Sachchithanantham, Consultant Haematologist
Professor Ashutosh Wechalekar, Professor/Hon Consultant Haematologist
Dr Carol Whelan, Consultant Cardiologist

Referrals for periodic fever syndromes should be addressed to:

Professor Philip Hawkins, Professor/Hon Consultant Physician
Professor Helen Lachmann, Professor/Hon Consultant Nephrologist, Clinical Lead
Dr Charalampia Papadopoulou, Consultant Paediatric Rheumatologist

Please include the following details in the referral:

• Patient contact details, including full address, email and telephone number(s)
• Any biopsy details (date and hospital where performed) and a copy of the report
• Results of serum electrophoresis and serum free light chains, if performed
• Bone marrow report, if performed
• Skeletal survey report, if performed
• DPD scan report and where done, if performed
• CMR report and where done, if performed

For referral to the fever service, please include results of any imaging, serology, cultures and serial assessments of CRP, ESR or white cells.

If you wish to discuss any medical issues prior to the referral please contact one of the consultants listed above on 020 7433 2725

If you wish to check availability of appointments please contact:

Mr Rizwan Shaukat

Email: rizwan.shaukat@nhs.net

Tel: 020 7433 2732

Send referrals to:

National Amyloidosis Centre
Division of Medicine
University College London Medical School
Royal Free Hospital
Rowland Hill Street
London
NW3 2PF

Email: rf.amyloidosisadmin@nhs.net

Fax: 020 7433 2817