Useful resources

Along with our own patient information resources, which you can find here, we also use publications from a number of other organisations.

Please note, the Royal Free London is not responsible for the information provided by external organisations. Please refer to the original author.

 

Resources from Royal Free children and young people physiotherapy team

Positional talipes calcaneovalgus

Positional talipes equinovarus

 

Resources from the Association of Paediatric Chartered Physiotherapists

The Association of Paediatric Chartered Physiotherapists (APCP) is one of the Chartered Society of Physiotherapy's largest professional networks and aims to support paediatric physiotherapists to deliver evidence-based care so children and young people can achieve their potential.

APCP has produced a number of information leaflets on a range of conditions and topics commonly referred to children's physiotherapy for advice and support. The leaflets have been written by qualified paediatric physiotherapists after an initial review of literature and where there is a lack of evidence, a consensus of expert opinion is agreed, correct at the time of publication.

These leaflets are freely available and intended for distribution to parents and carers. APCP is therefore happy for any physiotherapist or other healthcare professional or organisation to download and print these leaflets for distribution in clinical practice. APCP also allows uploading of these leaflets to other website servers to facilitate distribution to families.

APCP physiotherapy for children leaflet

A guide for schools and professionals (APCP)

APCP parent leaflet - Down's Syndrome

APCP parent leaflet - Osgood Schlatter's disease

APCP parent leaflet - turning head preference and plagiocephaly

APCP parent leaflet - intoeing gait

APCP parent leaflet - flat feet in young children

APCP parent leaflet - choosing footwear for children

APCP parent leaflet - choosing the right school bag

APCP parent leaflet - awake time ideas

APCP parent leaflet - promoting physical development: lying to sitting

APCP parent leaflet - baby walkers: are they necessary?

APCP parent leaflet - standing frames

APCP parent leaflet - standing frames safety and maintenance

APCP parent leaflet - selective dorsal rhizotomy

 

Other websites offering specialist support and information

 

Action Duchenne

Provides support and advice for children and young people with Duchenne Muscular Dystrophy (DMD).

www.actionduchenne.org

 

Activity Alliance

Support for disabled people to find opportunities to get active.

www.activityalliance.org.uk

 

Bliss

A charity for babies born prematurely or sick.

www.bliss.org.uk

 

Brittle Bone Society

Supporting people with osteogenesis imperfecta.

brittlebone.org

 

CanChild

CanChild is a research and educational centre that provides evidence-based information to improve the lives of disabled children and young people and their families.

www.canchild.ca

 

Cerebral Palsy Sport

Supporting people with cerebral palsy to play, participate and enjoy sport and physical activity.

www.cpsport.org

 

Contact

A charity for families of disabled children, supporting them with guidance and information and bringing families together.

www.contact.org.uk

 

Down's Syndrome Association

Information for parents of children with Down's Syndrome.

www.downs-syndrome.org.uk

 

Duchenne UK

Information about Duchenne Muscular Dystrophy.

www.duchenneuk.org

 

Dyspraxia Association

Parent group for support and information about dyspraxia.

dyspraxiafoundation.org.uk

 

Erbs Palsy Group

Support for families affected by Erb's Palsy.

www.erbspalsygroup.co.uk

 

Juvenile Idiopathic Arthritis

Information and support for people affected by juvenile idiopathic and rheumatoid arthritis.

jia.org.uk

 

Muscular Dystrophy UK

Information and support for people living with muscle wasting conditions.

www.musculardystrophyuk.org

 

National Autistic Association

Information, support and pioneering services for people with autism.

www.autism.org.uk

 

Parasport

Information and support for disabled people who want to take up sport from the British Paralympic Association.

parasport.org.uk/about-parasport

 

Physical activity guidelines for children and young people

Guidance on the recommended daily activity for children and young people.

www.nhs.uk/live-well/exercise/physical-activity-guidelines-children-and-young-people

 

Ponseti

Information about the Ponseti method for the treatment of clubfoot.

www.ponseti.info/ponseti-method.html

 

Riding for the Disabled Association

Horse riding and carriage driving for children and young people with physical and learning disabilities.

www.rda.org.uk

 

Scoliosis Society

UK wide patient support organisation for people with scoliosis and their families.

www.sauk.org.uk

 

Scope UK

A charity campaigning for disability equality in England and Wales, providing advice and support for disabled people including help for parents when their children are newly diagnosed.

www.scope.org.uk

 

Skills for Action

Information about joint hypermobility, low muscle tone and developmental co-ordination disorder in children.

skillsforaction.com

 

Spinal Muscular Atrophy UK

Support and information about spinal muscular atrophy.

smauk.org.uk

 

Steps

A national charity working for those whose lives are affected by childhood lower limb conditions.

www.steps-charity.org.uk