Useful resources
Along with our own information resources, which you can find here, we also use information resources from a number of other organisations.
Please note, the Royal Free London is not responsible for the information provided by external organisations. Please refer to the original author.
Resources from the Association of Paediatric Chartered Physiotherapists
The Association of Paediatric Chartered Physiotherapists (APCP) is one of the Chartered Society Physiotherapy’s largest professional networks and has the aim to supporting paediatric physiotherapists to deliver evidence-based care so children and young people can achieve their potential.
APCP has produced a number of information leaflets on a range of conditions and topics commonly referred to children’s physiotherapist for advice and support. The leaflets have been written by qualified paediatric physiotherapists after an initial review of literature and where there is a lack of evidence, a consensus of expert opinion is agreed, correct at time of publication.
These leaflets are freely available and intended for distribution to parents and carers. APCP is therefore happy for any physiotherapist or other healthcare professional / healthcare organisation to download and print these leaflets for distribution in clinical practice. APCP also allows uploading of these leaflets to other website servers to facilitate distribution to families.
PCP physiotherapy for children leaflet
A guide for school and professionals (APCP)
APCP parent leaflet – Down’s syndrome
APCP parent leaflet – Osgood Schlatter’s disease
APCP parent leaflet – Symptomatic hypermobility
APCP parent leaflet – turning head preference and plagiocephaly
APCP parent leaflet – intoeing gait
APCP parent leaflet – flat feet in young children
APCP parent leaflet – choosing footwear for children
APCP parent leaflet – choosing the right school bag
APCP parent leaflet – awake time ideas
APCP parent leaflet – promoting physical development: lying to sitting
APCP leaflet – baby walkers: are they necessary?
APCP parent leaflet – standing frames
APCP parent leaflet – standing frames safety and maintenance
APCP parent leaflet – selective dorsal rhizotomy
Other websites offering specialist support and information
The following websites offer specialist support and information.
Action Duchenne
Provides support and advice for children and young people with Duchenne muscular dystrophy (DMD)
Bliss
A charity for babies born prematurely or sick
Brittle Bone Society
Supporting people with osteogenesis imperfecta
Canchild
CanChild is a research and educational centre that provides evidence-based information to improve the lives of disabled children and young people and their families.
Cerebral Palsy Sport
Supporting people with cerebral palsy to play, participate and enjoy sport and physical activity.
Contact
A charity for families of disabled children, supporting families with guidance and information and bringing families together.
Downs Syndrome Association
Information for parents with Down syndrome.
https://www.downs-syndrome.org.uk
Duchenne UK
Information about Duchenne
Dyspraxia Association
Parent group for support and information about dyspraxia
https://dyspraxiafoundation.org.uk/
English Federation of Disabled Sport
Helping disabled people in sport and physical activity.
Erbs Palsy Group
Support for families affected by Erb’s palsy.
https://www.erbspalsygroup.co.uk/
Juvenile Idiopathic Arthritis
Information and support for people affected by juvenile idiopathic arthritis (JIA) and rheumatoid arthritis (RA).
Muscular Dystrophy UK
Information and support for people living with muscle wasting conditions.
https://www.musculardystrophyuk.org/
National Autistic Association
Information, support and pioneering services for people with autism
Parasport
British Paralympic Association (BPA) providing information on sport to disabled people.
https://parasport.org.uk/about-parasport
Physical activity guidelines for children and young people
Guidance on recommended daily activity for children and young people.
https://www.nhs.uk/live-well/exercise/physical-activity-guidelines-children-and-young-people/
Ponseti
Information about the Ponseti method
http://www.ponseti.info/ponseti-method.html
Riding for the disabled
Horse riding and carriage driving for children and young people with physical and learning disabilities
Scoliosis Society
UK wide patient support organisation for people with scoliosis and their families.
Scope UK
A charity campaigning for disability equality in England and Wales. They provide advice and support for disabled people including support for parents when their children are newly diagnosed.
Skills for Action
Information about joint hypermobility, low muscle tone and developmental coordination disorder in children
Spinal Muscular Atrophy UK
Support and information about spinal muscular atrophy
Steps
A national charity working for all those whose lives are affected by childhood lower limb conditions