Useful resources

Along with our own information resources, which you can find here, we also use information resources from a number of other organisations.

Please note, the Royal Free London is not responsible for the information provided by external organisations. Please refer to the original author.

Resources from the Association of Paediatric Chartered Physiotherapists

The Association of Paediatric Chartered Physiotherapists (APCP) is one of the Chartered Society Physiotherapy’s largest professional networks and has the aim to supporting paediatric physiotherapists to deliver evidence-based care so children and young people can achieve their potential.

APCP has produced a number of information leaflets on a range of conditions and topics commonly referred to children’s physiotherapist for advice and support. The leaflets have been written by qualified paediatric physiotherapists after an initial review of literature and where there is a lack of evidence, a consensus of expert opinion is agreed, correct at time of publication.

These leaflets are freely available and intended for distribution to parents and carers. APCP is therefore happy for any physiotherapist or other healthcare professional / healthcare organisation to download and print these leaflets for distribution in clinical practice. APCP also allows uploading of these leaflets to other website servers to facilitate distribution to families.

 

PCP physiotherapy for children leaflet

A guide for school and professionals (APCP)

APCP parent leaflet – Down’s syndrome

APCP parent leaflet – Osgood Schlatter’s disease

APCP parent leaflet – Symptomatic hypermobility

APCP parent leaflet – turning head preference and plagiocephaly

APCP parent leaflet – intoeing gait

APCP parent leaflet – flat feet in young children

APCP parent leaflet – choosing footwear for children

APCP parent leaflet – choosing the right school bag

APCP parent leaflet – awake time ideas

APCP parent leaflet – promoting physical development: lying to sitting

APCP leaflet – baby walkers: are they necessary?

APCP parent leaflet – standing frames

APCP parent leaflet – standing frames safety and maintenance

APCP parent leaflet – selective dorsal rhizotomy

 

Other websites offering specialist support and information

The following websites offer specialist support and information.

Action Duchenne

Provides support and advice for children and young people with Duchenne muscular dystrophy (DMD)

www.actionduchenne.org

Bliss

A charity for babies born prematurely or sick

https://www.bliss.org.uk/

Brittle Bone Society

Supporting people with osteogenesis imperfecta

https://brittlebone.org/

Canchild

CanChild is a research and educational centre that provides evidence-based information to improve the lives of disabled children and young people and their families.

www.canchild.ca

Cerebral Palsy Sport 

Supporting people with cerebral palsy to play, participate and enjoy sport and physical activity.

http://www.cpsport.org/

Contact

A charity for families of disabled children, supporting families with guidance and information and bringing families together.

https://contact.org.uk/

Downs Syndrome Association

Information for parents with Down syndrome.

https://www.downs-syndrome.org.uk

Duchenne UK

Information about Duchenne

https://www.duchenneuk.org/

Dyspraxia Association

Parent group for support and information about dyspraxia

https://dyspraxiafoundation.org.uk/

English Federation of Disabled Sport 

Helping disabled people in sport and physical activity.

http://www.efds.co.uk/

Erbs Palsy Group

Support for families affected by Erb’s palsy.

https://www.erbspalsygroup.co.uk/

Juvenile Idiopathic Arthritis

Information and support for people affected by juvenile idiopathic arthritis (JIA) and rheumatoid arthritis (RA).

https://www.jia.org.uk/

Muscular Dystrophy UK

Information and support for people living with muscle wasting conditions.

https://www.musculardystrophyuk.org/

National Autistic Association

Information, support and pioneering services for people with autism

www.autism.org.uk

Parasport

British Paralympic Association (BPA) providing information on sport to disabled people.

https://parasport.org.uk/about-parasport

Physical activity guidelines for children and young people

Guidance on recommended daily activity for children and young people.

https://www.nhs.uk/live-well/exercise/physical-activity-guidelines-children-and-young-people/

Ponseti

Information about the Ponseti method

http://www.ponseti.info/ponseti-method.html

Riding for the disabled

Horse riding and carriage driving for children and young people with physical and learning disabilities

https://www.rda.org.uk/

Scoliosis Society

UK wide patient support organisation for people with scoliosis and their families.

https://www.sauk.org.uk/

Scope UK

A charity campaigning for disability equality in England and Wales. They provide advice and support for disabled people including support for parents when their children are newly diagnosed.

https://www.scope.org.uk/

Skills for Action

Information about joint hypermobility, low muscle tone and developmental coordination disorder in children 

https://skillsforaction.com/

Spinal Muscular Atrophy UK

Support and information about spinal muscular atrophy

https://smauk.org.uk/

Steps

A national charity working for all those whose lives are affected by childhood lower limb conditions

https://www.steps-charity.org.uk/