Writer who received transplant as a teenager to speak at organ donation event next month
30 April 2019
Young people from black communities across north London are being encouraged to ‘talk about organ donation’ as part of a special event taking place next month in Tottenham.
The event - Organ donation: A conversation young black people need to have – will feature guest speak Akua Kezia, who had a liver transplant nine years ago when she was just 14.
Akua, who wrote a book about her experience of transplantation (The Transplant Girl), will talk about why it’s so important for more young black people to have conversations about organ donation and join the NHS organ donor register.
Hosted by North London Youth Worker Bilal Harry Khan, Akua will be joined by health professionals, organ transplant experts, and other young people affected by transplantation to discuss the issues surrounding this topic to educate, inform and dispel myths about donation.
Every year hundreds of people on the transplant list die while waiting for a suitable organ to become available. Research shows that people from black, Asian and other minority ethnic backgrounds wait longer for an organ transplant, and are more likely to die on the waiting list.
Dr Sarah Afuwape, renal and liver Practitioner Health Psychologist at the Royal Free London, is leading the NHSBT-funded Young People’s Community Engagement project, the NHS-charity collaborative that is organising the event. She said there is a combination of reasons why black people tend to wait longer for a transplant.
She said: “An organ transplant, for many, is best matched if received from someone who has a similar ethnic background to the recipient. However, proportionally, there are more black people on the transplant waiting list because black people are more likely to suffer from conditions that may require a transplant as part of the treatment. These include high blood pressure, diabetes and certain forms of hepatitis, which may lead to a patient needing a kidney or a liver transplant.
“However, for a number of different reasons, fewer black people become organ donors. These two factors lead to a shortage of suitable organs for black people in need of a transplant. At this event we will be exploring how to encourage more people from these communities to think and have discussions about organ donation.”
David Myers, chair of the Royal Free London organ donation committee, said: “Part of the role of the committee is to inform and educate, to give people across north London a better understanding of organ donation and transplantation. At this event we hope to dispel some of the myths around organ donation and that the young people who attend will speak to their friends and their families about the important issues we will be discussing.
“We’re delighted that Akua Kezia can join us – it’s vital that we have someone at the event who can speak about their first-hand experience of organ donation and why it is so important that people from all communities join the organ donor register and speak about that decision with their families.”
The event, which is free to attend, is funded by NHS Blood and Transplant, in partnership with Joined Up Thinking, Creative Youth Zone and the Royal Free Hospital’s Kidney Patients Association. Refreshments will also be available.
‘Organ donation: A conversation young black people need to have’ takes place on Saturday 18 May, 12.30-5.30pm at The Triangle and Young People’s Community Centre, 91-93 Saint Ann’s Road, London, N15 6NU.
Register for the event here: https://www.eventbrite.co.uk/e/organ-donation-a-conversation-young-black-people-need-to-have-tickets-59765501223
Picture caption (l-r): Joshua Akapo, from Joined Up Thinking, Dr Sarah Afuwape, Mottie Omideyi-Akapo,from Joined Up Thinking, graphic designer Denzel Kessie, actress and photographer Melissa Cofie and Akua Kezia.