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The Improving Black Health Outcomes (IBHO) BioResource study is a groundbreaking initiative aimed at changing this. By participating, individuals contribute to research that will help create a future where healthcare is fairer, more informed, and better tailored to the needs of Black communities.
Dr Nnenna Osuji joins the IBHO study
Dr Nnenna Osuji, chief executive of North Middlesex University Hospital (North Mid), recently enrolled in the IBHO study, acting on issues she speaks about often.
She explains: "Many of you will know I speak often about health inequalities and the disparities in outcomes affecting Black and minority ethnic populations — seen in maternity, neonatal care, and conditions like sickle cell disorder and thalassemia.
“One area we know we can do better on is research."
She continues: "I’m really pleased to have joined the IBHO study, which focuses on genomic research for Black and minority ethnic communities.
“While research can sometimes feel invasive, this study uses information already held in your health records — information that can make a real difference for future generations, something we want to leave as a heritage for our daughters, granddaughters, and family."
She encourages everyone eligible to take part, saying: "I would encourage you all to do the same. This is information that can make a difference to the future."
About the IBHO BioResource study
Led by the NIHR BioResource in partnership with Genomics England, the IBHO BioResource focuses on filling critical gaps in research by improving understanding of health conditions that disproportionately impact Black communities.
Its goal is to ensure that future medical advances benefit everyone through more inclusive and representative research.
Who can take part?
Anyone aged 16 or over from Black communities, including Black African, Black Caribbean, Black British, mixed Black heritage, and others, is invited to take part, whether you are a patient, staff member, or community member.
What participation involves
Participants provide a blood or saliva sample, complete a health and lifestyle questionnaire, and receive a £15 Amazon voucher as a thank you.
How to get involved
If you’re interested in participating, please email the IBHO research team at rf-tr.
If you have sickle cell or thalassemia, please email the Sickle Cell and Thalassemia Alliance for Research (STAR) team at University College London Hospitals via uclh.
We look forward to welcoming new participants and working together to improve health outcomes for Black communities.
