NET patient videos
The neuroendocrine tumour (NET) team at the Royal Free Hospital have produced a number of videos to help you find out more about NET. You can watch all the videos on our YouTube channel.
Patient experience talk and PRRT updates - Mark Zwanziger
Patient experience talk and PRRT updates, at the neuroendocrine tumour support group 21 August 2018.
Welfare advice talk at NET patient day August 2018 - Lucis Crème
Introduction to welfare advice and support at the neuroendocrine tumour support group 21st August 2018 by Lucis Crème, Macmillan Welfare Benefits Adviser.
Patients celebrate 20 years of care for treatment of ‘quiet cancer’ - Carmen.
Patients and staff are celebrating the 20th anniversary of the neuroendocrine tumour (NET) unit at the Royal Free Hospital, which is helping tackle a rare condition known as neuroendocrine (carcinoid) tumour, sometimes referred to as the ‘quiet cancer’.
Patients celebrate 20 years of care for treatment of ‘quiet cancer’ - Rose.
Patients and staff are celebrating the 20th anniversary of the neuroendocrine tumour (NET) unit at the Royal Free Hospital, which is helping tackle a rare condition known as neuroendocrine (carcinoid) tumour, sometimes referred to as the ‘quiet cancer’.
Patients celebrate 20 years of care for treatment of ‘quiet cancer’ - John.
Patients and staff are celebrating the 20th anniversary of the neuroendocrine tumour (NET) unit at the Royal Free Hospital, which is helping tackle a rare condition known as neuroendocrine (carcinoid) tumour, sometimes referred to as the ‘quiet cancer’.
Professor Martyn Caplin and Consultant and Radiologist Dr Dominic Yu at 9th NET patient support group.
Introduction and Interventional radiology procedures neuroendocrine tumour patients undergo.
Psychotherapist and counsellor Kym Winters at 9th NET patient support group.
Living with uncertainty: managing the emotional impact of a chronic condition.
Diagnosed NET patient Peter. M at 9th NET patient support group meeting.
Peter. M - a NET diagnosed patient who talks bravely about living with a Neuroendocrine Tumour.
Clinical Nurse Specialist Aisling McSweeney at 9th NET patient support group meeting.
Chair of the Meeting (Q&A’s).
Jorge Garcia-Hernandez introduces the 8th NET patient support group meeting
Jorge Garcia-Hernandez introduces the speakers at the 8th NET Patient support meeting.
Mr Kito Fusai at the 8th NET patient support group
At the 8th neuroendocrine tumour team (NET) at the Royal Free Hospital, Mr Kito Fusai gives a talk on Pancreatic surgery.
Yasmin Chotai at the 8th NET patient support group
At the 8th neuroendocrine tumour team (NET) at the Royal Free Hospital, Yasmin Chotai gives a talk on diet and nutrition.
NET patient story: diagnosis to treatment
Jane, a NET patient, was recently diagnosed. Here she shares her story from diagnosis to recent treatment in an informal interview.
NET: clinical studies
Jorge Garcia-Hernandez, medical statistician, gives a talk on the up and running studies held at the neuroendocrine unit at the Royal Free Hospital.
NET treatment and management: an update
Dr Toumpanakis provides an update on the treatment and management of neuroendocrine tumours.
Patient and partner experience of NET
Charles Suckling, a NET patient, shares with us his story from diagnosis to present day, including the perspective of his partner.
Advances in NET research: present and future
Dr Dalvinder Mandair gives a technical talk on advances in neuroendocrine tumours: present and future.
NET fundraising: upcoming events
Mike Wright and Jorge Garci-Hernandez, NET patient coordinators, provide an update on all upcoming fundraising events at the Royal Free London.
NET fundraising: Royal Free Charity
Lucy Power, database administrator at the Royal Free Charity, gives us an update on the charity's work at the Royal Free Hospital.
NET symptom management
Philippa Davies, lead nurse for neuroendocrine tumours at the Royal Free Hospital, provides an excellent and detailed overview of symptom management.
Complementary therapy do's and don'ts
Jorge Garcia-Hernandez, NET patient coordinator and medical statistician, presents the do's and don'ts of complementary therapies.
NET fundraising scheme
Mike Wright, NET patient co-ordinator, discusses the NET fundraising scheme and organises the first NET park run. Please join us on 5 December 2015.
A treat on top of the treatment
Keith Hunt MBE, complementary therapies co-ordinator, talks about how gentle massage can help with the stress of daily life.
Patient story: diagnosis to present day
A pancreatic NET patient tell us her journey from diagnoses to present day.
Patient story: radiotargetted therapy
A patient tell us her remarkable story after receiving radiotargetted therapy under Prof Caplin's care.
Meet Professor Martyn Caplin
Professor Martyn Caplin is the lead clinician at the neuroendocrine unit at the Royal Free London and the Chair of the European Neuroendocrine Tumour Society. Prof Caplin welcomed the first NET patient support group in July 2014 with an a overview of neuroendocrine tumours.
Meet Flora, a clinical nurse specialist
Flora Dangwa, experienced clinical nurse specialist, tell us her experience in running different support groups.
Meet Jorge, a senior research nurse
Jorge Garcia-Hernandez, former senior research nurse, talks about the different trials run at the NET unit and how patients can influence research.
Meet Maia, from the NET patient foundation
Maia Simmons from the NET patient foundation explains the role of the foundation and the different NET Natter supports groups across the country.
Patient story: travel insurance
A NET patient relates his experience of travel insurance issues in NETs and gives advice to those who have a NET and wish to travel.
Open discussion on travel insurance
Jorge Garcia-Hernandez, NET patient coordinator and senior research nurse, pulls together the comments, experiences and findings regarding travel insurance for patients with cancer, particularly neuroendocrine tumours.
Meet Dr Toumpanakis, consultant in gastroenterology and NET
Dr Christos Toumpanakis, consultant in gastroenterology and neuroendocrine tumours, provides a passionate overview of the role in clinical trials at improving patient care. In particular, Dr Toumpanakis tell us the paradox of patients presenting with similar diagnosis but having different outcomes.
Neuroendocrine tumours: the quiet cancer
Dr Christos Toumpanakis (MD PhD), consultant in gastroenterology and neuroendocrine tumours at the Royal Free London, and Jorge Garcia-Hernandez, senior research nurse at the Royal Free London, present 'Neuroendocrine tumours: the quiet cancer', at a Royal Free London Medicine for members event.
Diet and nutrition for patients with NET
Tara Whyand, specialist NET dietician, gives hints and tips on diet and nutrition for patients with NET and debunks some of the common myths regarding healthy eating for people with cancer.
Q&A with Tara, specialist NET dietitian
Tara Whyand, specialist NET dietitian, answers questions on diet and nutrition.
Molecular agents from a patient perspective
Liz Quaglia, clinical nurse specialist in NETs, provides a comprehensive evaluation of the molecular agents, sunitinib and everolimus, from a patient perspective.
NET research: genetic advances
Dr Chrissie Thirlwell provides an overview on the advances of NET research from the genetic perspective. Focusing on advances, caveats and the future.
NET discussion with Dr Navalkissoor
Dr Navalkissoor, nuclear medicine consultant, comprehensively explains the advances in NET treatment with radiotargeted therapy (PRRT). Particular attention is given to the molecule 177-Lutetium.
NET Q&A with Dr Navalkissoor
Dr Navalkissoor, nuclear medicine consultant, answers questions on the advances in NET treatment.
Meet Diane, fundraising manager
Diane Ryan, fundraising manager at the Royal Free Charity speaks about the role of the charity in supporting the NET unit and the patient support group.
PRRT and NICE appraisal update - download presentation here.