All staff in the clinical immunology department are actively involved in research. If you are treated in the department you are likely to be invited to participate in research.
Why is there so much research going on?
Primary immunodeficiencies are rare and still not fully understood. We are constantly trying to discover more about what causes them and what are the best treatments. We mainly investigate what you have, why you have it and how this affects your health.
Does research involve ‘experimental’ drugs or therapies which might be dangerous?
Not really. Usually our research just involves taking some blood, for example to see how your cells behave or to look at your DNA and try to work out which genes caused your immunodeficiency. Even research into treatments is usually just investigating a new way of giving an existing medicine or trying a medicine which we already use for something else and know is safe.
Do I have to take part?
No, participation in any research is completely voluntary. We will only enrol you into research if you provide written consent after being given all the relevant information. Whether or not you choose to participate your NHS care will be unaffected.
How do I find out more?
Speak to Sarita Workman, specialist sister in immunology research. She can be contacted on 0207 794 0500 ext. 33832 or bleep 2831, or by email at firstname.lastname@example.org.